Only Change One Thing at a Time

Many of you may know by now that we have a boy (Nick) with special needs. He’s our little sweetie, and these days, his good days far outweigh the bad days. But this wasn’t always the case. Figuring out what is bothering him can be nearly impossible at times because he is non verbal and [...]

Stress Busters

These tips were contributed by our member Lindsey Petersen. Be sure to read her blog titled Raising 5 kids with Disabilities and Remaining Sane Blog. I think the title says it all! Thanks Lindsey! Thoughts on things I do to reduce stress and remain sane: Ø    I buy each person in my family their own [...]

Administering Medications Through a Feeding Tube

Do you administer medications through a g-tube? Read all about it here. If you’re new at this, hopefully this blog will help you to feel more comfortable with the task. If you’re a veteran, maybe you’ll pick up something new. I also recommend that you read Prescription Medications: Avoid Mistakes and Get Organized. Administering Medications [...]

Prescription Medications: Avoid Mistakes and Get Organized

According to Consumer Affairs, it’s estimated that 7,000 deaths occur every year because of incorrect prescriptions. And as stated in an article by Forbes.com, medication errors affect 1.5 million people every year.  These are astounding statistics. And yes, I have caught a pharmacist making a very big mistake. Our son Nick was supposed to get [...]

Tomorrow’s Helpful Hints

I know all too well how overwhelming it can be when you first start having to administer a bunch of medications. Our son Nick is on about a dozen different meds because of his CP, Seizures and Kidney Transplant. It’s my job to give them to him. And when you have to put them through [...]

Tube Feeding: How to NOT Feed the Bed at Night

When Nick was fed overnight (for years & years), this is how I attached the tubing to his Mic-Key Low-Profile Gastrostomy Feeding Tube & diaper so that it didn’t disconnect or twist & kink. 99% of the time, we made it through the night without a beeping pump and we NEVER fed the bed We had [...]

Help Me Understand: The Autism Epidemic!

We have a son with special needs. Plenty to think about, worry about, ponder on and deal with on a daily basis. Although he has never been diagnosed with Autism, he does have self abusive behaviors. I empathize with families that have this characteristic to deal with. For us, this is the most difficult part [...]

How Do You Find Peace?

What better time to write about finding inner-peace than during the Holidays? Here is my story. I hope that I can touch at least one person in a positive way with this post… I remember all too well the horrible feeling I had when it actually sunk in that our son Nick was severely disabled. [...]

Thanksgiving and Getting Back Into the Swing of Things

Five days with Nick home. He was absolutely wonderful…so excited about Thanksgiving this year! I can’t wait until Christmas! Nick must have really been paying attention at school this year when they talked about turkey, family, etc.. When I went to get him out of bed on Thanksgiving morning,  I started to try to get [...]

Switching from Mic-Key to NUTRIPORT G-tube

We just got a letter from our medical supply company yesterday stating that the $ of Mic-Key buttons has gone up and our insurance won’t cover it. They’re phasing it out of their stock completely and replacing the Mic-Key with a new brand of skin level g-tubes called NutriPort (Kendall Healthcare). I hate changes when [...]

Next Page »